If cancer has affected your life, read this blog post.
Because it matters. Epic shit matters.
Loving, sharing, helping, hugging, caring for someone with cancer is epic shit.
And it matters.
Disclaimer : This is the longest post in the history of the world.
If you need a short cut… here is a wee video xoxox
Go grab yourself a pot of coffee or a humongous bottle of wine. You will need it.
No coffee? No wine? Tequila shooters will work in a pinch.
Same Same but different.
Do you want to know what cancer feels like for a patient or anyone who loves someone with cancer? It’s a caffeine high of heart thumping madness mixed with the sting of a tequila hangover. Minus the good times of the tequila.
CANCER is a roller coaster ride of emotion, love and laughter mixed with …
a whole lotta throw up.
This blog post is about ….
A journey of cancer.
It is politically incorrect.
Slightly offensive.
Somewhat of a Debbie Downer depressing.
And it has a happy ending.
Kind of like a hooker.
Cancer is a tricky little dude to write about. Finding the words to write is like writing a hot sexy love letter while sitting beside your Grandma…..But worse…..It’s impossible.
I know. I tried. Epic fail.
What’s the big deal about writing about cancer?
Surely, if I can hurl an acorn at a squirrel from my treehouse porch …
NOTE : the squirrel hurled the acorn at me first !!!!!!
{ I just screamed those words }
Surely I can write about cancer.
NOT.
Not easy at all.
I wrote this blog post a bazillion times.
Wrote it. Scratched it. Burned it. Started again.
I’m an expert. I practiced during my childhood with love notes to all the kindergarten boys.
Wrote it. Scratched it. Burned it. Started again.
It never worked. Thanks for the tomboy hair cut mom. THAT worked.
I remained dateless until 17.
Yup.
Then…while contemplating this blog post… a brilliant thought hit me.
The light bulb went off.
{ P.s. I need to grasp these smart light bulb moments, they don’t come that often }
I should write about cancer because
Dear Cancer, I HATE you.
Put your arm up if you know someone who has cancer. See… look how many of you have your arm up! Put your other arm up if you know of someone who has lost their life to cancer. I just know that so many of you have both arms in the air.
Now look around the room you are sitting in. Everyone around you is wondering why in the hell you look so stupid with your arms up in the air. They probably think you are getting robbed. Put those arms down. Or hand me your money.
Now is the time to put those arms to good use. Go HUG someone. I will wait for you.
Did you get up from your chair? Do it. I know you are still sitting there.
Get up.
HUG. HUG. HUG.
Dear Cancer, I THANK you.
I believe in HOPE . I BELIEVE in believing : Believing that there is light through all this darkness. I don’t need to remind anyone that there is darkness in cancer.
It is so very sad
It is so very scary
It makes you cry
It makes you cry the kind of tears that come out of your nose. Not the pretty super model cry. A REAL cry. Hyperventilate into a bag. CRY. Can’t catch your breath. CRY.
Cry like you have never cried before. CRY.
* It tugs at the deepest parts of you that you didn’t even know existed * It shatters your belief system * It makes you doubt * It uproots you in ways that you didn’t even know could happen * It confuses everything * It is scary as hell * Yes * I said that already *
* It is scary as hell *
Dear Cancer, I HATE you.
But that secret sauce alone, just isn’t enough. If one more person tells me that having a positive outlook on life is what can save someone from dying of cancer – I will drop kick them AND bitch slap them all at once.
OK, I would at least trip them.
I have learned, over my lifetime, that a positive attitude is not enough. It is essential. It it beautiful. It is full of awesomeness, but that alone is just not enough.
A positive outlook, some magic juice mixed with some vitamins, aromatherapy oils and good old fashioned great attitude will not save you from dying from cancer. When I hear that theory I want to tell people :
They can just shove that theory right up their whahzoooooo.
You can quote me on that.
Before you jump through the computer and tell me that I am wrong.wrong.wrong….I am going to tell you that I am the boss of this blog. LOL. I can write whatever I want. I tell that to my kids all the time.
You are the boss of you.
Except if they attempt to text at the dinner table.
Then, I am the boss of them.
Just sayin’.
* I do believe in filling our bodies with health, nutrition, vitamins, minerals and a lot of water * Copious quantities of water * I do believe in aromatherapy * Mostly because it smells so damn good * I believe in trying alternative medicine * I believe in praying * I believe in loving life * I believe in doing everything humanely possible to live live live * I believe in learning how to laugh, cry and sip your wine without it coming out of your nose
* (P.S. That is a cancer survival skill )
It is still not enough.
*
We need each other. We need a small village of support. We need to stick together like glue. Without it, we become…well…unglued. We fall apart at the seams.
We need a support system beyond belief. We need modern medicine. We need our friends. Our family. Our children. Doctors. Nurses. Complete strangers. Health care workers. Wine. Tequila. Whatever floats your boat.
*
Dear Cancer, I THANK you.
*
We need to hug each other more often.
We need to recognize that sometimes the smallest, kindest move is MONUMENTAL to another soul.
Even if we HUG with our words.
But is it enough?
*
Is it really enough????!!!
*
I have known and loved so many beautiful souls with cancer. Each one did all the right things and yet….they died. I have also met others who have smoked like a chimney and drank like a fish and lived to be 102 years old. Cancer can be like Russian roulette. You never know when the gun is loaded and who it’s going to shoot. There can be no rhyme or reason.
So why not try a paradigm shift ? Through the sadness, find some fun. Honour the sad moments and cry. Then leave them behind you and find some great ways to make the best of the journey. Why not just suck it up and have a great time? Hoot and holler and embarrass yourself. Who cares?
*
*
LIVE LIFE or DIE TRYING.
Life is about the journey not just the destination.
Why do I feel this way? Because I have lived my entire life in the sidelines of cancer.
The observant.
Dear Cancer, I HATE you
for taking the helm of our family ship.
Dear Cancer, I THANK you
for the blessing and privilege of letting me keep my Mom.
Dear Cancer, I HATE you.
Dear Cancer, I HATE you.
Blog post update : Sadly, we lost my Uncle Marty on Nov 25th, 2012 after 8 short months of having Multiple Myeloma. You may read about that here : When cancer takes the life of someone you love.
Are you starting to wonder what kool-aid my family has been drinking? Think again. This happens every single day. We are not alone. There are millions out there. Biz-millions. Trillion gajillion billion-hood of millions. So cancer, you can suck it.
Dear Cancer, I HATE you.
Enough is enough.
***
My Dad. My beautiful Dad.
Dear Cancer, I HATE you and yet, I THANK you.
I am thankful for the opportunity to say goodbye to my Dad. I’m thankful to have learned so much from him.
I’m just thankful that I had a Dad that quite simply, just loved me so very much.
I’m eternally grateful.
I didn’t write my lifetime of cancer history to make you feel sorry for me.
On the contrary. I shared the story to share with you that you are not alone. We are all in this together. We can choose to close our eyes to it, or we can choose to find ways to make a difference in the lives of others.
A positive difference. An epic difference. Epic shit matters.
Dear Cancer, I thank you.
I thank you for all the beautiful moments, epic moments and good times. I am still saddened that good people die. Friends and family who do everything in their power to live….die. It happens. Every. Single. Day. So now I honour that. I honour that when someone tells me that they have cancer…. I listen. I don’t tell them that they will be fine. That they will beat it. I think that it makes them feel small to say those words. As if what they are doing is not enough.
Because if they don’t beat it, they failed??!!
Well, bull shit.
They WON because they are living a life that they love.
So screw you, CANCER.
Five years ago, we thought Michael could possibly live for 5 years. That was the median life expectancy for his cancer.
5 years goes by fast.
I promise.
Today… he’s looking mighty fine. Damn fine. Hotter than a hot tamale. Note : To our children, don’t get grossed out. Grandma even said that about Daddy. Pinky swear it. I think she even wrote it down on a card when she sipped all that brandy at the last Christmas party.
Shhh. Don’t tell her that I told you.
Fast forward 5 years. Yes, we had some scary moments. I’m not going to go there, because it actually makes me cry. Big FAT tears…CRY. I have had many moments where I wonder if the man of my dreams will be in my life for long. Yes, I worry that he will die. I don’t ever write the words for fear that I will jinx myself. So high school of me. Who says that shit? OMG, if I say it out loud, he may die.
WAIT !!!!…
I just wrote it.
Now I’m screwed.
Michael qualified for a stem cell harvest.
Dear Cancer, I thank you.
I thank you with all my heart and soul.
What does a stem cell harvest mean?
I will try to put it into real words because when the Doctor explained it to us for the first time, my eyes glazed over from confusion and my brain caught a train to oh-my-Gawd-what-did-she-just-say-land?
Stem cell collection means : Michael had to have high dose chemotherapy last week. Big ass doses of chemo that knocked his socks off. If that dose was blue, he would have pee’d like a smurf. It was intense. The chemo is designed to ‘trick’ his body into creating massive amounts of stem cells. Massive stem cell production takes massive medical intervention. Massive doses of chemo. Massive doses of medication to get the stem cells out of the bone marrow and into the blood stream. Wow, massive words everywhere.
The magic concoction also had negative side effects. It made him very sick. His blood counts dropped. He had fevers. He vomited for 8 hours straight. He slept for 2 days. He needed medication to prevent damage to his kidneys. He had to drink some funky liquid to protect his organs. It tasted like a combination of sheep urine and goat spit. Ok, I didn’t sip it, but it smelled gnarly. I almost hurled just pouring it in the glass. Gross.
He definitely took one for the team. I would have chucked it in the garbage pail when no one was looking.
{I am my fathers daughter}
His immune system went through a world war. He needed antibiotics to avoid infection, and had to avoid crowds to protect his immune system.
No crowds ?!! Too bad. So sad. That just meant that I needed retail therapy to shop ALONE.
Me… shop alone?!!
Dang.
Dear Cancer, I thank you.
I joke. Not Really.
He then started a 7 day regime of injections to boost his stem cell production. We needed a home care nurse for the injections. I get hot flashes when I have to give Michael needles. I’m having a HOT FLASH just thinking about having to give him a needle. I’m a turd.
The injections helped his body to create new stem cells and push them into his blood stream. Massive levels of stem cells. 8 million of them, to be exact !!!! I am officially calling him the 8 million dollar man. Shove over, 6 million dollar man. A new hottie is on the scene.
The good news is that they were able to collect stem cells for a future stem cell transplant for Michael. It took three attempts, three days, and one final 5 hour sitting to collect the stem cells. A pretty epic day. Awesome on all levels of awesomeness. The whole process of stem cell collection is mind-blowingly impressive and bewildering.
The bad news is that his body has been pretty beat up. He is tired. He has lost weight. His hair will start to significantly fall out. He will likely lose his hair on his head, his body, but not his eyebrows or eyelashes. So he will look like a naked snuffleupagus. Do you remember Snuffy’s eyelashes? Epic. Well at least Michael will have Snuffy eyelashes.
So what did his buddies do?
They got naked. Sort of.
You know what they say ;
Why did we make this choice for stem cell harvesting and high dose chemotherapy? Believe me, it was a tough choice based on what he would have to go through, and continue to go through.
As time goes by, the chemotherapy will someday stop working.
At some point Michael will need to rely on the stored stem cells. Those stored stem cells are like money in the bank for a rainy day.
The day will come when all chemotherapy and treatment options will simply just run out.
That day will come. That is just real life.
When all the love, the positive attitude and healthy living…. just isn’t enough.
The day may come where love and support and the absolute zest for life may not outweigh the weight of cancer. A day where every option has been exhausted. When that day comes, he will have the last resort treatment of a stem cell transplant using his own stem cells.
It is the rabbit that they can pull out of a hat.
Minus the rabbit. And the hat.
It is stem cells. And a great guy. Love that combo.
That is good enough for me.
So before you say…have hope, think positive, all will be well, he can beat it…… think again. We do have hope. We do think positive. We do every single thing possible to LIVE LIFE.
We don’t make cancer our story. It isn’t our story. It is just there.
Cancer is like having a monkey on your back.
Sometimes he messes with your hair.
Sometimes he jumps on your shoulder.
Sometimes he plays games.
Sometimes he just shits on your shirt when you least expect it.
Sometimes he just makes you LAUGH.
And do epic shit. Because it matters.