fbpx

Together : We CANcer-vive

Video : We hope that by sharing our cancer story we empower others with love and light to make a difference in the lives of those battling cancer.  Be a part of our #WeCANcerVive movement and make a positive difference in the fight against cancer.  Together, we cancer-vive.


Cancer :

There are FEARS. Fancy meeting you here, old friend.

It’s been a looooooong time since I’ve written an update on Michaels cancer. Right now, I’m actually stuck for the right words to say so I just blurted a bunch of words on to this page and hit publish. And Michael made this video for you after your outpouring of love on Instagram ….



Cancer is a mofo


As many of you may know, 13 years ago Michael was originally diagnosed with a rare non Hodgkins lymphoma. The median survival rate was 5 years. Yet, here he is… already a walking miracle. Three years ago, his cancer transformed into a deadly leptomeningeal metastasis. Most people live weeks to months with that diagnosis. Weeks to months. Cancer coated nerves on his brain and free floated through his cerebral spinal fluid / central nervous system. After intrathecal chemo treatments, and IV chemo treatments … he hit a wall. We didn’t know if he would survive.

He stopped all treatment.

We travelled to Bali. We saw a healer.

We hit the reset button.

Here’s the thing about the roller coaster of life around cancer …. We eat right. Live healthy. Love hard. Breathe fresh clean air. Surround ourselves with love and light. Michael is on oral chemotherapy pills, daily. We try everything. Healing through cancer is like throwing spaghetti on a wall. We do everything in the let’s-heal-this-fucker-of-cancer-in-any-way-possible. That kind of heal.

Apparently. That’s not enough.


PS. I love Michaels fashion statement in the hospital. Blundstones and hospital gowns are a thing. Right? 🙂

Love and instagram

If love could heal, imagine what we could do? I’d like to believe that love has helped the healing, every step of the way. Perhaps that is why he is still here? We solve a lot of problems with LOVE.

Why can’t this one be the same?

Apparently. That’s not enough.

Last Christmas, it hit again. We were on our #BucketListFucketList road trip in our airstream enjoying presence with our kiddos instead of presents. Michael had such severe back pain, we had to make an emergency trip home. Watching Michael wheelchair bound and flying home was sooooo hard. The knowing that something was looming. Scary. On all levels of scary. Our kids held us through it all. They booked our flights. They packed up our airstream for storage. They got us to the airport and on that plane and to the hospital. Just. Like. That. Their love is palpable. My heart exploded and broke all at once. It explodes with love for them, and heartbreak that some day they may lose their Dad.

Michael had 5 rounds of radiation treatments on a 4 cm tumour on his spine. Together, we gave cancer a smack down. Once again.

Apparently. That’s not enough.

Video : We hope that by sharing our cancer story we empower others with love and light to make a difference in the lives of those battling cancer.  Be a part of our #WeCANcerVive movement and make a positive difference in the fight against cancer.  Together, we cancer-vive.


This is a tough go. Like, really tough.

This part of the road is getting really hard. For a loooooong time now, Michael has night time twitches. He moves/twitches about 100 times an hour while sleeping. Hugging him at night is like hugging an earthquake. In the past month, he has had bad back pain, facial numbness, numbness in his shoulder, numbness in his feet, an inability to easily lift one arm above his head, headaches, and double vision. He can’t see clearly for the first 10 minutes when waking up.

This shit is getting real.

Michaels oncologist (who may be an actual Saint, and we love her) has been taking such great care of him. She immediately ordered a brain MRI and lumbar puncture (to test his cerebral spinal fluid for cancer.)

The results are in ….

Unfortunately, it was not the best news. Lymphoma cells are on nerves entering his internal auditory canal, dorsal roots at multiple levels in his cervical spine (neck area) and free-fucking-floating in his cerebral spinal fluid AKA central nervous system <<< which is pretty much the most important part of life itself. When lymphoma cancer cells pass the blood brain barrier it’s not fucking good. Pardon my fucking French.

Cancer is like watching heartbreak unfold right in front of you.  It’s like having a front seat to the most heart wrenching experience.  It puts a big fucking lump in my throat to watch it and feel so very hopeless in the ability to stop it in it’s tracks. It is an uncontrollable train wreck of emotion. Cancer is where the rubber meets the road in the race of life. To watch Michael fight it, is like watching a champion. It’s brave. Warm. Funny. It is deep in the depths of sadness. It’s the not knowing what is going to happen next. It’s the knowing what’s going to happen next.  It’s a shit storm smack down of gut wrenching pain.  It’s an ugly cry a million times over.  It’s walking through the wilderness of grief and happiness… all at once. It’s an eye opener. It’s devastation. It’s gratitude. It’s love. It’s all that, and all those things… that take your breath away.


I feel gutted. Crushed. Scared. Terrified, actually. Can’t eat. Can’t sleep. Can’t think straight. Terrified.


It’s chemotherapy time again

He has been down this road before, and has been fighting the good fight. He will fight it again. Intrathecal chemotherapy is the only way to attempt treatment past the blood brain barrier. He is scheduled for weekly treatments, starting next week… throughout Christmas and the New Year. We will then reevaluate and go from there.

Basically. This all really sucks.

Cancer is horse shit.

And we are scared.

And we need your help.

We want to take our fear and turn it into a force for good and start a movement called we CANcer vive.

This dreaded disease takes so much, and we would love love love to find a way to bring some positivity and light to it all. How will we do that? With you. Will you help us?

Join the Facebook Group here.

Join our email newsletter here (We promise, it won’t be a stuffy boring one!)

Let’s somehow make this whole experience better. Cancer is in our world, we can’t change that. But we can change how we deal with it. How we cope. How we love through it. Lean into it. Together, we are stronger.


Video : We hope that by sharing our cancer story we empower others with love and light to make a difference in the lives of those battling cancer.  Be a part of our #WeCANcerVive movement and make a positive difference in the fight against cancer.  Together, we cancer-vive.


Together, we cancer-vive . Maybe, just maybe…together we can find the magical key of getting through it all by sharing, leaning, loving and anticipating the heartache and change. Perhaps we can be kindred spirits in the fight against that undesirable club we call cancer.

Here’s our ideas for a We CANcer-vive campaign :

We want to bring some light to someone else’s darkness through super fucking cool and feel good items. This page is a small start, but it is a start. You can be a part of the #WeCANcerVive movement here :

Our ideas so far are to have items and merch that empowers those around us….like We CANcer-vive tshirts, hats, cozy throw blankets, essential oil diffusers, candles, digital download art quotes… all the things, anything, everything that it takes to make a patients experience BETTER. We want the experience to be better for their loved ones, friends and family too.

We would also love to find a way to gift cancer patients and their loved ones care packages. Like cancer care kits. A portion of the proceeds would go toward helping a person in need. Maybe people could buy the a kit and donate it to someone in need? Or gift kits to others? Can we do this together, somehow?

This is where you come in. We want to pay it forward in a positive way and we need your help. We would love your input, your ideas… anything … everything… big or small… it doesn’t matter… we are grateful for any and all ideas. Please share in the comments below. xoxo

Maybe. Just Maybe. We can make a positive difference in this world in the fight against cancer. Let’s fight it with LOVE and knock that cancer fucker right off its pedestal. Pardon my French.


Leave a Reply

Your email address will not be published. Required fields are marked *

57
Leave a comment...

Diane

Hi Michael and Lynne I just want to say that most of my life I have been surrounded by beautiful people and this includes both of you. How wonderful it is to hear Michael talk in the way he does about his Cancer (pig shittin thing!) Sorry, but I say a lot of things that are unacceptable in this world, I just don’t care anymore I should say what I feel. I am a lady (defo-not) of some years, Oh lets be honest about this my next birthday I will be 70 but not an old foagy 70 a very… Read more »

Auntiepatch

I’m here for you, my friend!
That is one strong hunk of a man you have! And your offspring are just as strong as their parents. I have all of you in my prayers.
Please give that sweet hunk a big hug from me. Tell him to Kick Cancer’s Butt! If anyone can do it, Michael can! (shaking my pom-poms!)

All my love –
Auntiepatch =^..^=

Peggy Sisson

Hi Lynn
the very best wishes to you and Michael.My husband was a Michael to.He had stage 4 Colon cancer. I lost him 4years
Ago. I know how difficult it is for you…My heart is broken but I’m so very grateful for the 35 years we had together.. He was the love of my life… Stay Strong and all my best!!!!!!
Peggy

Denise

Here’s my wee low tech suggestion for merch. How about a set of lovely pillow cases printed with the days of the week? You know you forget what day it is ….. ( and you will really get mixed up in the morning!!) But …. at least you can put your head down on a nice fresh pillow and be thankful for something that day – it could be a gratitude reminder??!!??

Kim

Lynne, I met Michael 17 years ago when he was consulting with Covey. He has such a presence about him, it doesn’t surprise me one bit that he is a source of light and love that is rising above cancer. It’s surreal that I’m writing you to say thank you for a wake up call that I need. I lost my uncle to it a year ago. A dear family friend years before. I’ve seen it test families beyond what I imagine is humanly possible to endure. And while it appears on the surface that Cancer won…..it didn’t. It doesn’t… Read more »

Marla M

Sending soooo much love, light, courage and healing vibes your way ❤️🙏🏼❤️🙏🏼❤️🙏🏼

Jennifer

Make sure Michael wears those shit-kickers every time he goes in for treatment. Prayers to all of you and keep your spirits up. You are such an amazing family and I’ve thought of you often since first following your blog. In your toughest times know that we all are out here, lifting you up. Someday I’ll get out that way and rent that treehouse! I’d love to sit down and have a glass of wine with you…

Kathryn Gordon

Hi Lynne and Michael, I have met you (at Paula’s celebration of life) but I feel like I know you well from reading your blogs. You both are the real deal. I am so sorry that cancer is rearing it’s ugly head again. Lynne, you have such a creative mind…I am awestruck by it. If there is any way I can help, please let me know.

Best wishes to you both and your family.

With love and admiration,

Kathryn

Hi Lynne and Michael and family, What sticks out to me is your positivity throughout this. That is definitely your message I think. And I do believe you/you’ll give others hope in the face of such diversity or for those complaining about basic simple life struggles, (some sometimes-needed), reality-check, perspectives! So tapping into that part of it somehow, sharing that wise, insight and spreading the word, offering hope for those experiencing the same thing, offering perspective to those complaining about the daily grind and sharing your gift of love to those who may need it. Like Michael says, Brene Brown… Read more »

Cheri W

Oh Amazing Lynne and Amazing Family – how do I even put into words all the feels I have for you all. I’ve been following you for quite a few years now, I don’t even remember I found you, but I’m so grateful I did. How is it that cyberspace allows us all to feel like family and that if I saw you on the street I could hug you.? I’m in awe of the strength you all possess as you travel side by side through this fu#*ing quagmire of the unknowns. I wish I had great meaningful words of… Read more »

Debbie

Please check into Chris Wark’s website and book called Chris Beat Cancer! He is a 15 year cancer survivor with so much knowledge to share about his cancer journey. He refused to do the traditional treatment and went with a plant based diet. I am reading all about it myself since I was recently diagnosed with cancer. You will love all the research he has done about everything cancer related. https://www.chrisbeatcancer.com/ I wish all the best to your husband and your whole family! Only God can wipe out all the wrong on the earth today!

Holy shit, guys! My life is richer because we got to share an evening around a campfire with you two…and if I can help you with ANYTHING in this next chapter of your adventure through this mess, I’m in.
Much love to you both, and to your amazing kiddos. Arms around you both.

Nicola

So this may only appeal to people who have a dark sense of humor like me but my mum & I talk about writing a book called ‘The benefits of Cancer’ detailing all the up sides – not having to pay for haircuts, waxing etc, being able to eat as much as you want (she has stomach cancer), being able to play the cancer card when you don’t want to attend a meeting, function etc. Obviously it’s a joke but could make people going through shit smile for a few minutes.

Sandy Dulmage

How about ” Laughter is the best Medicine” ..joke books, funny stories. List of funny movies, & comedians that can be found on Netflix or YouTube. Maybe it will become like the Chicken Soup for the Soul books.

Inspired by you amazing humans every day. Sending you more positive vibes than can ever be put into words.

Craig

Many times I’ve been alone
And many times I’ve cried
Anyway you’ll never no
The many times I’ve tried….
And still they lead me back
to the “Long And Winding Road“ …
I got lucky, 25 years and counting
I lost my younger sister 10 years ago to “C”
It’s Life… It’s Messy… It’s Wonderful…
…and in the end, The Love you take
is equal to the Love you make… ❤️
ps… ( I may have referenced the Beatles once or twice… 🎶🤫)
❤️ ❤️❤️❤️❤️❤️ 🙏🏻

Kelley

Words are inadequate. I’m deeply sorry you and Michael and your family have to face all of this. Like so many others, I’m here and I care. Holding you all close in my heart.

Melanie Janke

I love the idea of having a cancer care kit that you can give to someone. I have just reached my 5th year surviving Stage 4 colon cancer, and even though I have relegated the trauma to history, the details of the battle are still very clear in my head. The term “cancer journey” is such a stupid one – it sounds like you’re looking out the window from The Orient Express. The battle with cancer is draining, tedious, and soul-sucking for the patient as well as closest loved ones. You feel like death., Here are my suggestions for items… Read more »

Jenny & Ken Rose

Our worlds have intersected a few times over social media but we have never met. My husband, Ken, has stage 4 Glioblastoma (brain cancer – think Gord Downey of the Tragically Hip). We were told in March 2016 that he would be lucky to see another 12 months. And yet, like Michael, he has surpassed all the odds set before him. Life is brutal and beautiful all at the same time. We send you all so much love and good energy. Happy to join you in this journey. Together is always better. Sign us up!

Leigh

I’ve followed your website, blog, pinterest, etc. for many years. Basically I’m your stalker. I’ve been inspired, delighted, and sad. You make me laugh and cry (sometimes at the same time) AND my favorite word is Fuck. It suits so many situations, especially cancer. My beautiful, brave daughter, Jen was diagnosed with breast cancer one year ago at age 39. The grace, courage and resilience she has shown reminds me of your Michael. I am in awe of them and the many others dealt this hand. I would love to be a part of helping others in their fight. Hold… Read more »

Shari Hosaki

Lynn, You were so kind to me when 2 years ago my niece (then 26) was diagnosed with a rare form of cancer and I needed to cancel my treehouse reservation. Well, it is back. And at 28, she has stage 4 metastatic cancer. She is a warrior, just like Michael and she has more strength than anyone I know. She has two small children and we are fighting a custody battle with a man who has no compassion. But she shines everyday and finds a way to find gratitude. I admire her, just as I admire you, Michael and… Read more »

Carolyn Rowland

My husband has stage 4 Chronic Lymphocytic Leukemia which is the sister disease to Non Hodgkins Lymphoma. My dad died from NHL. I fucking hate cancer. I am an RN and have cared for patients for 35+ years. Cancer has no boundaries. I would love to help in any way I can. Did I mention I F-ing hate cancer??

Hi Lynne, I have followed your blog for a while now, girl you crack me up. I have a kindness project, I leave hidden messages everywhere. Normally I ask people to keep my little gift and pay it forward with another act of kindness, I would love to be part of your movement, and use your #weCANcervive, but most importantly what kind of “message”, “wish” or “intention” would you ask for?. By this I mean, imagine you ask a random person to close their eyes and send an intention back to the universe, back to you, what would it be?.… Read more »

Sam B

Cancer Sucks. No doubt about it. Perhaps the Australian Charity – Love Your Sister – might give you some ideas that could be incorporated into your plan. Samuel Johnson is a legend who has basically put his life on hold to fundraise for cancer since his sister’s diagnosis and death but he brings a lot of light to people too along the way (as do you) and they have merchandise and the Fuck Cancer Bank. Good luck.

Lisa

I have followed your blog for many years and you always inspire, delight, make me laugh and cry. You are like the friend that doesn’t get mad at me cause I haven’t called in a long time so, thanks for that! I am so sorry for you and your family. It’s bullshit to the nth degree that we have to fight daily to keep cancer at bay and I don’t know any family who isn’t going thru it….mine included. Please know that you Lynne and Michael and your kids are in my prayers. I am sorry and grateful that you… Read more »

Jen j

Hello, your trust in God and your love for Michael is a shining light.In gods’ plam,you play a big role in caring for him and God will gide you down that road towards giving Michael a life of love with you and fill your hearts with the strength of hope. I am a chemotherapy and cancer survivor,I am not mad,i am not mad because God created the doctors’ knowledge that saved my life. god watches over all of us and already knows the care you give Michael is blessed and you have the strength for it May God keep you… Read more »

Susan Fletcher

Your strength, courage and love are astounding. Having seen my mother die of colon cancer over a 2 year period, I can relate to the challenges of seing a loved one suffer.
In terms of input on paying it forward, I wonder whether an established organization like Wellspring https://wellspring.ca/ or Gilda’s Place https://gildasclubtoronto.org/ would have ideas?S

We have been in the cancer trenches with you. Hubby had stage 4 colon cancer and was supposed to have five years of “low dose” chemo. We finally put our foot down at the four and a half year mark. None of us know what life will bring. All we can do is savor every moment, live and love hard and depart with no regrets. You probably already have someone, but I’m a graphic designer. If there’s any assistance I can provide with branding, design, email campaigns, social media, please let me know. I will donate all of my work… Read more »

Kate

Well nah nah nah boo boo!! Lucky me I don’t have anyone in my life going through this or know anyone experiencing this at this moment! But I’ve come to know you and your family through the wonders of cyberspace and couldn’t be happier making your acquaintance! You don’t know me from shit ( pardon my French ). You have made me laugh, cry, wonder and love harder. But, this isn’t about Me!! It’s about you and Michael’s fight and your sweet loving family fighting this fight together. The only things that I can do or offer to help is… Read more »

Fannie V

You know she is!! 100000000% And she would just love so much that we are in touch with each other. I know I’m not right next door…but I’m close enough that I can be there for whatever you need.

Cynthia S

Dearest Friends! I have survived only because of a miracle.I am going to pray for you both daily. “No weapons formed against you shall prosper. “ We must surrender to the Lord ,it is out of our hands,Give it to Him! I know about the fear, the anger,the injustice of the whole /((&+/thing! I bless you from the top of your head to the soles of your feet with glowing health!! On your behalf we do not claim this cancer but rebuke it in the name of Christ Jesus.!!!! Oh, how I wishI could say something to help you. I… Read more »

Jane

Thank you for letting us into your world. I had melanoma in my 20s and did not know enough to be afraid. Now I’m in my 60s and I know I’m lucky. So far. You provide an example of how to deal with terrible adversity. Thank God for our medical system, and I remember you in my prayers.

Fannie V.

Lynne,

Love to all of you. Completely relate. Not many people use the term “horse shit” My dad uses it a LOT. He uses it to describe a shitty call during a game he’s watching…if the mailman is late…and to describe his cancer and all he’s been through. So girl friend…I totally agree….this is all horse shit. I’m here sending love and light to you and Michael and cannot wait for the day I get to give you both a big, fat, Greek hug!!!!! xoxooxoxo

FREE DOWNLOADABLE 

 Sign up! We'll send occasional, inspiringly witty emails with exclusive deals, blog faves, design tips & free downloadable prints.  Like this one!

Unsubscribe at any time. No spam. Not even in a can.